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Saria Smiles

Life with an Aspergers Child

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Saria

Back to the future

I was driving Saria and Ava to school Friday morning when Saria said that she wants to keep her Littlest Pet Shop toys forever.

“I hope that I never gives them to charity,” she said. If she ever gives away her Littlest Pet Shop toys in the future, she will have to hold a college science fair and reward prizes to the first person that invents a time machine.

Saria will then use that time machine so that she can go into the future and yell at her future self, “What were you thinking?!”

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I see dead people

Ava was sleeping in so long that Genevieve got worried about her and asked Saria, “Can you go check on your sister, and make sure she’s alive?”

Saria responded with, “Yeah, the thing is… I don’t really want to touch a dead person”.

The Patch

Daytrana

Saria has been taking Daytrana®, the methylphenidate patch, for two weeks now, and I thought it was time to post about our experiences.

Saria takes Ritalin®(methylphenidate) for her attention deficit symptoms. Without it, she’s pretty much in lala land all day and acting goofy. She still isn’t comfortable taking pills yet, so she had been taking the liquid form of the drug. Saria actually prefers the chewable tablets, but there has been a shortage on them for quite awhile.

While researching the shortage of the chewable form of methylphenidate, I discovered that there was a patch. It seemed like a good idea, because it would be a sustained release of the standard drug, and in theory would prevent any ups and downs.

I called our insurance company, because it wasn’t on our drug benefit formulary, and they said that it would be covered without a preauthorization, but at the highest tier, which would be $50 a month. Noven, the company that makes Daytrana, currently offers copay insurance that will reimburse one up to $60 through the end of 2013 each time a prescription is filled. We didn’t have the information when we filled it the first time, but plan on trying to use this benefit when we get it refilled.

The patch goes on the hip, and one is supposed to alternate hips each day. The first time we used it, there was a red spot that lasted a day, but now there’s no reaction. Although the patch is supposed to be waterproof, it did come off in the bath, and it’s probably a bad idea to have the patch wearer take a bath with another child.

We haven’t noticed any improvements over the typical drug as far as attention goes, but Saria is off of school for the summer, and we don’t require a lot of concentration from her. She definitely is not in lala land though, like when she doesn’t use methlyphenidate.

We had set an alarm to remind us to take the patch off at 5pm, but found that Saria was having problems getting to sleep, so we moved the alarm up to 4pm, and things are back to normal. It’s definitely important to set an alarm, because if you forget to take the patch off awhile before bedtime, good luck sleeping.

There are some great benefits to using a patch though. She no longer has to swallow the nasty tasting liquid form of the drug, twice a day. There is no interruption in the middle of her day to take another dose, which she hates. When school starts, she will be able to feel like a normal kid. She won’t have to go down to the office to take her medicine after lunch, and no one will know that she’s taking medicine.

Future Saria

Genevieve found a note in her office that Saria had left herself.
Genevieve found a note in her office that Saria had left herself.

G-A-Y

photo by Essie Gilbey

Saria was going on about her best friend, and ended it with, “And sometime when I’m G-A-Y, I might even marry her, but I haven’t thought about that yet, and I have lots of time.” It’s great that she already knows that she has plenty of time to figure out if she’s G-A-Y. She couldn’t explain why she spelled it out.

Sherlock Holmes fix

photo by John Lester

The cat has been hiding today, and Saria decided she was going to dress up as Sherlock Holmes to find him.

She has spent an hour looking all over the house for a brown plaid shirt, which no one in the house owns, but she needs for her costume.

She is freaking out, and refuses to settle on a different shirt or use a little more imagination to pretend that she’s wearing a brown plaid shirt. She is so fixated on exactly how her costume has to be, that she is never going to get around to actually doing the fun part of pretending to be Sherlock Holmes and look for the cat with her spy glass.

She is being super grumpy, as everything is annoying her now, since she can’t find exactly the right shirt. She’s been asking if she has enough allowance saved to buy a brown plaid shirt, which she probably wouldn’t be able to find the perfect one at the store, anyway, and that she would only wear once.

Saria just came into our room and said in a snotty voice, “Mom, I want my own credit card and pay my own taxes, to buy my own brown plaid shirt.”

Crime and punishment

lps

Saria and I were talking about her and her sister needing to keep their toys upstairs when the babies come.

Saria asked me, “What will happen if we don’t keep our toys upstairs?”

I answered, “If I find them, they’ll go in the garbage. If the babies find them, they’ll choke and die.”

“Is that all? We won’t get in trouble?”, was Saria’s response.

April Fools

honey-nut-toasty-osWe didn’t actually have any pranks pulled at our house on April 1st. I’m not sure if it’s because the girls didn’t know that it was April Fools Day, or if it’s because they had never even heard of the holiday.

While watching some Disney channel, which the girls have been doing a lot lately while they’re home this week on spring break, Saria learned about the holiday.

Saria came up with a pretty good prank to pull on her sister by swapping the cereal bags inside of all of the cereal boxes. Her sister went to eat some Mom’s Best Honey NutToasty O’s®, and found some Sweetened
Wheat-Fuls®
 inside instead.

Since then, Ava has been trying to come up with a prank to get Saria back.

Tonsillectomy

medicine

Saria had her tonsils and adenoids removed last Friday in order to treat her mild sleep apnea. She’s been in pain, on a soft food diet, and her appetite has been low, so she’s been drinking a lot of meal replacement drinks.

Her throat has been feeling a lot better the past two days, but her ears are aching, which is normal due to referred pain caused by swelling.

Saria expects her pain medicine to remove the pain entirely, and instantly, after she takes it. As a result, she doesn’t believe us that it works and has been fighting us on taking it. Even though we’ve explained it to her over 20 times, she thinks it’s impossible that the LorTab is helping with her pain in any way. The possibility of it helping with her pain is as possible as her being a green alien, she said.

This morning, Saria had a milk chocolate flavored Carnation Instant Breakfast and then asked, “Mom, can I have a reincarnation?”

Saria’s mom was laughing too hard to answer. I though she was asking to be reincarnated again because of the pain, but she was just asking if she could have a second Carnation breakfast drink.

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